One moms journey through life wondering "am I doing this right?"

Poems

HEAVEN'S VERY SPECIAL CHILD A meeting was held quite far from Earth: "It's time again for another birth." Said the Angels to the Lord Above, "This special child will need much love." Her progress may seem very slow, Accomplishments she may not show And she'll require extra care From folks she meets way down there. She may not run or laugh or play Her thoughts may seem quite far away: In many ways she isn't adapt And she'll be known as handicapped. So let's be careful where she's sent We want her life to be content. Please, Lord, find the parents who Will do a special job for you. They will not realize right away The leading role they're asked to play But with this child sent from above Comes a stronger faith and richer love. And soon they'll know the privilege given In caring for the Gift from Heaven. Their precious charge, so meek and mild Is Heaven's Very Special Child.                                                                                                         Edna Massimilla



WELCOME TO HOLLAND



by
Emily Perl Kingsley.



I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland




                                                            Blessed Are Those


I. Blessed are those who stop and listen to my chatter. You may not understand me; but I love when people talk to me, for I long for companionship, too.
II. Blessed are those who take my hand and walk with me when the path is rough, for I easily stumble and grow weary. But thank you, too, for letting me walk alone when the path is smooth, for I must learn independence.
III. Blessed are those who take the time to tell me about special happenings, for unless you make special effort to inform me, I remain ignorant.
IV. Blessed are those who wait for me. I may be slow, but I appreciate your patience.
V. Blessed are those who are not ashamed to be seen in public with me, for I did not choose to be born thus. It could have been you as well.
VI. Blessed are those who do not pity me, for I don't want pity. All I want is understanding and respect for what I have learned as well.
VII. Blessed are those who notice my accomplishments, small as they may seem to you. I must work long and hard to learn many of the things you take for granted.
VIII. Blessed are those who include me in their games, even though I may not understand the rules, I still like to be included in your activities.
IX. Blessed are those who think of me as a person who loves, and hurts, and feels joy and pain just like you do, for in that respect I am normal.
Author Unknown

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